The Blog

Is Your Treatment Not Working? And Other FAQ About my CVID

You lick a stamp on a letter to your old self​​​​​​​You always liked being good at things, didn’t youIsn’t it funny what a person can…

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CVID Updates: Lifestyle Modifications, Support, and Sharing

I’ve been posting quite a bit lately about my journey with the chronic illness CVID. It’s been a pretty rough few months, but I am…

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Inside the Mind of a Person with Common Variable Immune Deficiency (CVID)

By the time I open my eyes my husband has already done the grueling work of getting the kids dressed, fed, and off to school.…

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Demanding a Path to Better: Being Your Own Health Advocate

I’ve written before about discovering my primary immunodeficiency and living with Common Variable Immune Deficiency. I’ve also talked about how the diagnosis was pretty much done…

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If I Did Everything the Health Professionals Told Me

Having a rare chronic illness – in my case primary immune deficiency – is more than just physically exhausting. It is emotional torture, rife with conflicting advice,…

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