The Blog

Demanding a Path to Better: Being Your Own Health Advocate

I’ve written before about discovering my primary immunodeficiency and living with Common Variable Immune Deficiency. I’ve also talked about how the diagnosis was pretty much done…

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If I Did Everything the Health Professionals Told Me

Having a rare chronic illness – in my case primary immune deficiency – is more than just physically exhausting. It is an emotional mindfuck, rife with conflicting…

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Living with Primary Immunodeficiency

Ever since my second child was born in 2013, I haven’t been the same. My pregnancy, delivery, and recovery seemed uneventful enough (apart from a…

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