The Blog

Is Your Treatment Not Working? And Other FAQ About my CVID

You lick a stamp on a letter to your old self​​​​​​​You always liked being good at things, didn’t youIsn’t it funny what a person can…

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CVID Updates: Lifestyle Modifications, Support, and Sharing

I’ve been posting quite a bit lately about my journey with the chronic illness CVID. It’s been a pretty rough few months, but I am…

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If I Did Everything the Health Professionals Told Me

Having a rare chronic illness – in my case primary immune deficiency – is more than just physically exhausting. It is emotional torture, rife with conflicting advice,…

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Living with Primary Immunodeficiency

Ever since my second child was born in 2013, I haven’t been the same. My pregnancy, delivery, and recovery seemed uneventful enough (apart from a…

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