The Blog

Why I’m Stopping Treatment for my CVID

I write a lot about my invisible chronic illness to help inform folks who may be Google searching for answers or just commiseration. I’ve been…

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CVID Updates: Lifestyle Modifications, Support, and Sharing

I’ve been posting quite a bit lately about my journey with the chronic illness CVID. It’s been a pretty rough few months, but I am…

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Inside the Mind of a Person with Common Variable Immune Deficiency (CVID)

By the time I open my eyes my husband has already done the grueling work of getting the kids dressed, fed, and off to school.…

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Demanding a Path to Better: Being Your Own Health Advocate

I’ve written before about discovering my primary immunodeficiency and living with Common Variable Immune Deficiency. I’ve also talked about how the diagnosis was pretty much done…

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